INFLAMMATORY BOWEL DISEASE (IBD)
The Crohn’s & Colitis Foundation (CCF)
Premier Non-Profit dedicated to raising Awareness, Patient Education & Resources & funding cutting edge Research to bring Effective Treatments to You ! Tons of Great resources on traveling with IBD, Medication education, School & Work rights and More !
You And IBD.com
Well illustrated patient resources to better understand IBD in the context of treatment, pregnancy and surgery.
Girls With Guts
All Female 18 y/o & Up non-profit providing community, education & resources. Amazing group of dedicated & supporting women !
A Gutsy Feeling
Treat to Target strategies in Ulcerative Colitis explained for both Clinicians & Patients.
Developed by Girls With Guts, ACHLCME, Purdue University College of Pharmacy, Tina Aswani Omprakash & Neilanjan Nandi, MD.
IBDesis
Global South Asian Community of IBD Patients working to provide knowledge to/for each other & to De-Stigmatize IBD.
Inflammatory Bowel Diseases.net
Patient community & clinician developed educational resources for patients.
SAIA
South Asian IBD Alliance: Global, united organization of Patients & Clinicians of South Asian descent working to Elevate South Asian community Education, Advocacy, Research & Increased Medication Access in IBD.
The Open Restrooms Movement
Advocate for greater awareness on bathroom access legislation & download the We Can’t Wait (bathroom finder) App !
IRRITABLE BOWEL SYNDROME (IBS),
Pelvic Floor Dysfunction (PFD)
& MOtility disorders
The Rome Foundation
Dedicated non-profit providing education, guidelines, & scientific data to enhance the diagnosis & treatment of Disorders of Gut-Brain Interaction.
American Neurogastroenterology & Motility Society
USA society focused on Functional gut motility disorders including Esophageal Dysmotility, IBS, Colonic Inertia & Pelvic Floor Dysfunction.
Low FODMAP Basics
Educational Videos explaining the Low FODMAP regimen. Remember: Elimination is Temporary but Re-Introduction is Necessary !
International Foundation For Gastrointestinal Disorders (IFFGD)
International society Focused on Function & Motility Disorders of the GI tract.
Irritable Bowel Syndrome.net
Patient community resource center replete with patient & educator sourced information.
NUTRITION ACCESS
Academy of Nutrition & Dietetics
Find a registered dietitian right for you via this searchable database !
Low FODMAP Basics
Educational Videos explaining the Low FODMAP regimen. Remember: Elimination is Temporary but Re-Introduction is Necessary !
Monash University
Research authority with International database of Monash University Low FODMAP certified dietitians
OSTOMY EDUCATION
UOAA
Non-profit with proven FREE resources on Nutrition, Self-Care, Intimacy & MORE for Ostomates.
WOCN
Wound & Ostomy Nursing organization providing tried & true recommendations on ostomy care.
Patient Coach
Actual Ostomates enhanced by formal training to guide you through your journey with an ileo-, colo-, or uro-ostomy of all types (ileo-, colo-, uro-ostomy) !
Ostomy 101
Virtual classes, Online App & More !
CELIAC DISEASE
& GLUTEN SENSITIVITY
Celiac Disease Foundation
Latest research & insights in Celiac management.
Beyond Celiac
Patient Advocacy & Awareness !
PREGNANCY IN IBD
IBD Parenthood Project
Future Mothers & Fathers - One stop shop for resources on Conception planning for a Baby !
Mother to Baby
Provides mothers evidence based medication safety & breast feeding information in an easy to read format !
PIANO Registry
Created by Dr. Uma Mahadevan to study effects of IBD therapies on conception, pregnancy, infant development, breastfeeding safety & outcomes.
ibd: SEXUALITY & intimacy
AASECT:
Sex & Intimacy Specialists
National database of providers who can help you on your journey.
SIECUS:
Sex Ed You Can Trust
Publications, guidelines & information on sexual health.
LGBTQ National
Help Center
Free & confidential peer resource and hotline.
OSTOMATE: SEXUALITY & INTIMACY PRODUCTS
mental health resources
Rome Foundation GastroPsych Directory
Global directory of GI Behavioral Health providers
Suicide Prevention Lifeline
24/7 Access to Local Centers that can Help.
Call 1-800-273-TALK
American Psychiatric Association
Find a board certified Psychiatrist (MD) with this database finder.
ABCT Database
Find a licensed behavioral and/or cognitive therapist.
The Trevor Project
24/7 Crisis Intervention & Suicide Prevention to LGBTQ. Phone, Online Chat or even Text.
Call 1-866-488-7386
National Assn of Cognitive Behavioral Therapists
What is CBT ? Learn more & find a practitioner.
American Psychological Association
Find a Licensed psychologist in this national database.
IBD: Covid-19
IOIBD
Expert panel & consensus on IBD from faculty across the globe.
SECURE-IBD
Database & Atlas of clinician reported IBD patients with COVID-19 examining outcomes on IBD treatment.
CDC
Patient community resource center replete with patient educator sourced information.
PATIENT MEDICAL DICTIONARY
My Pathology Report
Learn to ‘decode’ your pathology report.
GI & chronic illnes SOCIETIES
ACG Gut Knowledge:
A - Z
ADVANCED clinical guidelines for clinicians & patients.
AASLD
Primary Sclerosing Cholangitis, Autoimmune Liver disease education and more resources.
AGA GI Patient Center
By clinicians FOR patients. Peruse a comprehensive list of illnesses & their management.
AARDA
Interdisciplinary clinician & patient education & advocacy initiatives.
ASGE Patient Resources
Understand how and what is involved in procedures and how they are used to diagnose and treat GI & Liver illness.
INTERNATIONAL IBD SOCIETIES
IOIBD
Expert IBD faculty from across the Globe.
European Federation
Additional European country Crohn’s & Ulcerative Colitis Associations
CCF Global Partners
Crohn’s & Ulcerative Colitis Foundations in other countries.
CCF India
India’s premier Crohn’s & Colitis Foundation. Fabulous website and great resources !
European Crohn’s & Colitis Organization
Europe’s premier academic IBD organization.
IBD FAQ
What is a BIOSIMILAR ?
Has your insurance company mandated a change of your Infliximab (Remicade) to a Biosimilar agent (Inflectra, Renflexis, Avsola)? Common questions on what this means can be found here.
EXPENSIVE Meds ! Patient Assistance
Medications & Lab testing can be frustratingly expensive ! Check out this search list of Patient Assistance programs curated by the Crohn’s & Colitis Foundation just for you !
Coverage Denied ! What do I do?
Quick hit list on what went wrong, what you can do, and how your and your IBD team can advocate for coverage, brought to you by the Crohn’s & Colitis Foundation